Sep 23, 2026 · 37 min
A filmmaker turns nursing-home neglect into a reform movement
Susie Singer Carter: Exposing America's Nursing Home Crisis, Alzheimer's Care, and the Fight for Long-Term Care Reform
The episode connects one family’s Alzheimer’s-care crisis to systemic failures in oversight, accountability, and long-term-care policy.
- 1Susie Singer Carter’s mother developed a severe pressure wound in a highly rated nursing home, exposing the limits of reputation and ratings.
- 2The documentary traces neglect to profit pressures, lobbying, weak oversight, and inadequate enforcement rather than isolated individual failures.
- 3ROAR combines public storytelling, practical family guidance, and organized advocacy to push for transparency and long-term-care reform.
Don't miss
Carter describes discovering her mother’s severe stage-four pressure wound in a highly rated nursing home, the moment that turned grief into advocacy.
The brief
Filmmaker and advocate Susie Singer Carter recounts discovering a severe stage-four pressure wound on her mother during Alzheimer’s care at a highly rated nursing home.
Her personal loss becomes a broader investigation into nursing-home neglect, where profit pressures, lobbying, weak oversight, and inadequate enforcement reinforce one another.
Carter explains why telling a painful story is not enough: the documentary expanded into a docuseries and a sustained campaign for accountability.
Families choosing care should look beyond polished common areas and ratings, touring resident rooms and speaking directly with staff, residents, and families.
Through ROAR, Carter and Rick Moncastle are building public pressure for long-term-care reform, arguing that collective voices can move policymakers.
Featuring
Susie Singer Carter
MedicareBooks & mentions
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